Support · Education · Connection · Research · Hope
The TED & Graves' Support Community Alliance was created with one purpose: to ensure that no person affected by Graves' disease or Thyroid Eye Disease feels alone while searching for answers, support, and treatment options.
A real person reads every message.No bots, no call centre, no obligation.
The basics
Two related autoimmune conditions — the immune system mistakenly acting against the body's own tissue. Here is the short version.
An autoimmune condition in which the immune system causes the thyroid — the small butterfly-shaped gland in the neck — to produce too much thyroid hormone. That state is called hyperthyroidism.
An autoimmune condition affecting the muscle and fat around the eyes, making those tissues swell. It usually goes through an active phase, where inflammation comes and goes over months, and then settles into a stable phase.
How they relate. Most people with Thyroid Eye Disease also have Graves' disease, but they are two separate conditions: the eyes can be affected before, during or long after the thyroid, and eye symptoms do not always follow what the blood tests say. That mismatch is one of the reasons this journey gets confusing — and one of the reasons this community exists.
This is general information, not medical advice, and every person's experience differs. Talk to a qualified healthcare professional about your own situation.
About Us
Our community was founded by a clinical research organization with extensive experience conducting clinical trials in Graves' disease and Thyroid Eye Disease. Through years of working closely with individuals living with these conditions, we have seen firsthand that the journey extends far beyond laboratory results, medications, and doctor appointments.
That is why we created this community.
Who We Are
Our team includes clinical research professionals and healthcare providers with extensive experience working with individuals affected by Graves' disease and TED.
Including experience with clinical research evaluating investigational therapies for these conditions — knowledge we bring directly to the people who need it most.
Our background gives us a unique understanding of both the medical and the personal challenges that can accompany Graves' disease and TED.
Our Mission
By helping them better understand their condition and the options that may be available to them. We are committed to providing:
Why We Created This Community
Some did not know where to turn. Others did not realize that additional treatment or research options might exist. Many simply wanted someone knowledgeable to take the time to listen to them.
We believe people affected by Graves' disease and TED deserve more than information from a website. They deserve a community.
A community…
that listens.
that understands.
that helps them explore their options.
that keeps searching for better answers alongside them.
Clinical Research & New Treatment Options
Because of our background in clinical research, one of our goals is to help our community learn about clinical trials and investigational treatment opportunities that may be relevant to their condition.
Clinical trials can provide qualified participants with an opportunity to contribute to medical research and, in some studies, receive investigational therapies that are not yet commercially available.
Participation is always voluntary, and not every clinical trial or treatment option is appropriate for every individual. Eligibility for a clinical study is determined according to the specific study protocol and by qualified research and medical professionals.
You reach out — tell us where you are in your journey.
We listen — a member of our team follows up personally.
We share options — education, resources and, where relevant, research studies.
You decide — always voluntary, always your choice.
You Are More Than a Diagnosis
Behind every diagnosis is a person with questions, concerns, goals, and a life that extends far beyond their disease. That person is why this community exists.
Our Vision
We envision a future where every person affected by Graves' disease or Thyroid Eye Disease has access to reliable information, compassionate support, knowledgeable healthcare resources, and opportunities to learn about advances in treatment and clinical research.
Until better treatments — and ultimately cures — are found, we will continue supporting the community, one person at a time.
Questions
Still unsure? Write to us at support@tedgravessupport.org — there is no wrong question.
Yes. Membership, information and support are provided at no cost, and there is never any obligation to take part in anything we share with you.
No. The community is open to anyone affected by Graves' disease or Thyroid Eye Disease — including people who are still seeking answers, and the family members and caregivers who support them.
No. We provide education, support and information about options — including clinical research. We are not a substitute for your healthcare team, and any decision about your care should be made with a qualified healthcare professional.
A member of our team will get in touch to understand your situation and share information about research that may be relevant. Participation is always voluntary, and eligibility is determined by the specific study protocol and by qualified research and medical professionals.
What you share is used only to respond to you and to provide the support and information you asked for. We do not sell your data. See our privacy notice for details, and contact us at any time to update or delete your information.
We aim to respond to every message within two business days. If your situation is urgent or you are experiencing a medical emergency, please contact your physician or local emergency services rather than waiting for our reply.
Join the Community
Whether you were just diagnosed, are exploring treatment options, or are supporting someone you love — we would like to hear from you. Share a few details and a member of our team will follow up.
Prefer email? Write to support@tedgravessupport.org.
A real person on our team will read what you wrote and get back to you, usually within two business days. You are not alone in this.
Contact
For general questions, resources, or just to talk to someone who understands.
support@tedgravessupport.orgAsk a question and a member of our team will reply, usually within two business days.
Write to usWant to know whether a study might be relevant to you? Start here — it costs nothing to ask.
Ask about research optionsThank you for writing. We usually reply within two business days.
This site is not for emergencies. If you are experiencing a medical emergency or a sudden change in your vision, contact your physician or your local emergency services immediately.
